We looked inside some of the tweets by @ehlersdanlosuk and here's what we found interesting.
Inside 100 Tweets
We have a NEW project page! This research explored experiences of healthcare from parents' perspectives in relation to their children with diagnosed/suspected hEDS or HSD. https://t.co/Y1MIrxW3iV @laurenmpurdy @GemmaSPearce @KayJulier @DrEReinhold @ehlersdanlosuk @HMSACharity https://t.co/QE0CiY1x6D
Next year, this co-captain is aiming to raise by then for both @mndassoc & @ehlersdanlosuk to raise awareness for both charities as one is close to my heart and the other is for everyone including the legend, the great @Rob7Burrow for #3peakschallenge @LDSuperLeague @leedsrhinos https://t.co/2aWnFV9nt2
This day a year ago, was the hardest thing I’ve ever done. I raised money for @ehlersdanlosuk by walking 5K. May not seem a lot to people, but when ya joints dislocate by getting out of bed, it’s tough 😂🦓 @BigFunRun https://t.co/u5xiMULKdL
Jessica's making the invisible visible! Jessica creates invisible illness products, from posters, to t-shirts and lanyards - all in support of invisible illnesses! Jessica is donating 10% of the sales of all products to EDS UK. https://t.co/joWXMWSnOg